Dakota Center for Independent Living

Dakota Center for Independent Living

Lee’s Story

There is more to Lee than Wilson’s Disease. Lee loves to spend time with his horse and used to be a Bronc rider. He is funny, witty, and always trying to get people to smile. Lee is a 33 year old man with Wilson’s Disease. For those of you who don’t know what it is: Wilson’s disease is a rare inherited disorder that causes the body to store too much copper. If your body cannot eliminate copper properly, it accumulates and can damage the kidneys, brain, and eyes. Liver disease, central nervous system dysfunction, and even death can occur if not treated. However, when diagnosed and treated early, many people with Wilson’s disease live normal lives. Lee was diagnosed with this in his 20’s. For Lee, there were many challenges that have come along with this disease. Some of those challenges include some deep rooted anger, including outbursts and other aggressive behaviors, which has resulted in Lee being in several different placements during his short 33 years. Lee got involved with The Money Follows the Person Program and we were able to assist him with securing an apartment in Bismarck and getting his apartment services set up. Since his transition in 2016, he has come a long way in which his speech has improved. His mood got significantly better since he has decreased his outbursts. Because of his progress, the amount of time he needs assistance throughout the day has lessened, and he has a better quality of life. He is getting to spend more and more time with his horse, both riding and training. Riding his horse has given Lee muscle relaxation and core strength to help decrease some of the symptoms of the Wilson’s Disease.